Only 20 People In History Were Born Like Me | BORN DIFFERENT
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A 22-YEAR-OLD with over 130,000 TikTok followers was born with a genetic condition so rare that less than 20 cases in medical history have ever been recorded. Barber Say syndrome has no known cure and its side effects include excessive hair growth, papery thin and fragile skin, outward turned eyelids and a large mouth. Kawana was born without eyelids and her gums grow continuously - this means she has had more than 20 surgeries on her mouth and will keep getting them for the rest of her life. Kawana has a special relationship with her doctor Marco, a genetics specialist who has been following Kawana since she was born. Having not seen each other for over a year due to the pandemic, Kawana will be finally paying Dr Marco a visit.
Follow Kawana on TikTok:
www.tiktok.com/@dandaramelo22
Director: Marilia Marasciulo
Videographer: Luiza Damiao
Producers: Giacomo Brunelli, James Thorne
Editor: Thom Johnson
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A 22-YEAR-OLD with over 130,000 TikTok followers was born with a genetic condition so rare that less than 20 cases in medical history have ever been recorded. Barber Say syndrome has no known cure and its side effects include excessive hair growth, papery thin and fragile skin, outward turned eyelids and a large mouth. Kawana was born without eyelids and her gums grow continuously - this means she has had more than 20 surgeries on her mouth and will keep getting them for the rest of her life. Kawana has a special relationship with her doctor Marco, a genetics specialist who has been following Kawana since she was born. Having not seen each other for over a year due to the pandemic, Kawana will be finally paying Dr Marco a visit.
Follow Kawana on TikTok:
www.tiktok.com/@dandaramelo22
Director: Marilia Marasciulo
Videographer: Luiza Damiao
Producers: Giacomo Brunelli, James Thorne
Editor: Thom Johnson
Click here to follow your favourite Truly shows on Instagram!
Truly - instagram.com/trulyshow
Born Different - instagram.com/borndifferentshow/
Shake My Beauty - instagram.com/shakemybeauty/
Hooked On The Look - instagram.com/hookedonthelookshow/
Beastly - instagram.com/beastlyshow/
Ridiculous Rides - instagram.com/ridiculousridesshow/
Dog Dynasty - instagram.com/dogdynastyshow/
For more amazing content, click here!
Beastly: isnets.info/first/9LxuffQCm_Z4KBCoXZvSHA.html
Barcroft Cars: isnets.infofeatured
She seems so sweet I wanna be friend with her!!!
I love this she is not letting her looks stop her
GGGGGGRRRRRRoooooossssss
Your beautiful inside and out
What a wonderful girl! She hasn't let anything dampen her determination to enjoy life.
I LOVE YOU XOXOXO
You are a very strong beautiful young lady. I could not be happier than to know that you are doing so well. Keep it up, sweetie. A lot of people out in the world like you the way you are.
Lela from futurama. Divine
God bless her, she’ll be a huge inspiration not to just girls, boys as well, she’s a heroine for many I know this cannot change anyone who hate they’re outside appearance and ashamed off themselves not limited to people who are born with horrible birth defects which have 0 control of. We can say this any person. And to the very high mountain top, the magazines of models are who ever, which makes the experience just worst, and most of the time it’s not even something natural just some minor to major Photoshop skills and featuring programs especially image filters, and this is very dangerous, I feel if Tech hadn’t been the way it is now many people would do to look like models saying someone is “fat” and emotionally individuals. And have unhealthy habits losing weight till you can please yourself less but please the masses, strangers ppl who don’t even know us, she has great parent’s and takes me back with my late finance, she was always shamed of her “visuals” till we gotten so far and never felt the love I’ve gave, shedding that “aura’ about what mentally destroyed her from deep inside.... so very hurtful losing her dad... almost feel the exact same with my late fiancée So torn and majorly hurt broken hope this young lady live the lifestyle till it’s time for her to leave this world and go to the next one and hope we are “right” before we all go hopefully by clock and not by premature demise.
I love you Kawana! You are so special and inspirational and I'm proud of you and your accomplishments. Always remember this world needs people like you!
Aaahhhhhhh!!!!!
Beautiful, positive and strong girl..God bless her♥️
❤❤
Burt Simpson
Ugabuga
Бедная! Была бы парнем , смогла бы бороду отрастить ..Но не унывает,молодец!
She can do plastic surgery if she want
She has great people around her She has a better attitude than 99.999% of the people on this planet If more people were like this girl our world would be a better place I’m so sorry to hear about the loss of your Father from what’s been said on here he sounded like a great Man that was lucky to have a Daughter like You God Bless You
Such wise words. When I see the strength of love in such people, I realise those who cannot accept them have the problem.
Jesus Christ.
Our Lord and Savior almighty praise his name
Good for her for getting out there and setting a positive example
And to think I spent millions on plastic surgery and skin bleaching cream to look like that!
Shes like any other girl! just because of her face?? shes beautiful :D
Parabéns guerreira, vc merece td d melhor!
Damn mexicans need to go away!
I am also a big fan of SPORT
Nos primeiros 7 segundos eu pensei que ela estava falando russo, depois que eu fui perceber que era português lkkkkkkk
she lookin like Linda Hamilton in T2
eu sou a única brasileira aqui?
I love her hair 😍
🙏
Hans...
Bro all she needs is eye lids, ortho work and it's a wrap. She is not ugly. I am not a girl but even I would date her. Stop being so hateful and mean. And I read a comment saying parents disown their children all the time for birth defects. That is awful. People have more ugliness inside that it's astounding and that is one thing that would scare me away before this gorgeous woman. Curvy and sexy too.
To be honest. I think she is really pretty. Her energy too. Very feminine and stronf at the same time.
This and many other cases makes me not even want to marry.. Because I am basically just a bag of flesh and bones and knowing my partner wouldn't love me unconditionally is just enough for me to not even feel invested.. Like could she find love?
Why do you think that?
You're a beautiful young lady. First pray to God and seek His will as to whether to marry or not!
I think Plastic surgery will be good for her
Meu amor sua beleza e digna ,e não deve nada a ninguém seja feliz amei vc...
These people: having life changing diseases Me: crying because I got scammed in roblOx
God bless you girl stay strong and positive ..people can be cruel..but you are rare you are one of gods chosen special people....be proud..❤😇
Да нормальная ты девушка не печалься какое счастье видеть слышать идти куда хочеш, руки ноги есть. Рожай детишек и ты узнаеш какая есть любовь на этой земле, и мир покажется тебе раем. Ты красотка живи долго и будь счастлива....
None of us had a say in how we would look or think or act but we burden the shame as if we did.
Omg the most weird and sad diseases ive seen here. Life can be so cruel
Beautiful woman
I like your strength
When you dont clean the makeup off your face
God bless you
❤️🌻
What an amazing journey - and now she is dancing, her passion. Brilliant 💕
Essa realmente é uma guerreira. Eu confesso que se eu estivesse no seu lugar acho que não teria a mesma força e determinação que você. Parabéns pelos seu vídeos no Tik Tok e obrigado por nos ensinar tantas coisas boas. Que Deus ilumine seu caminho sempre, você merece tudo de melhor.
She is amazing!!!
❤❤👍❤
You are beautiful
She has an awesome attitude!
You go girl 💕
Dandara!! Mulher incrível guerreira.. amo vc
Hugs to you sweetheart! You. Are. Beautiful! God bless
Dude so inspiring! You go girl!
I am so grateful
I wonder if it hurts in some way.
She looks so beautiful, when she looks in the mirror she should say she's beautiful and no one or anything will stop that
Stop lying, you just want to sound intelligent but you don't. She is far from good looking!
الله شافيك يارب العالمين
0:41 "Super Mario"
Count your blessings and be nice
Это счастье что девушка родилась не в России, где одичалые со смехом тыкали бы в неё своими пальцами. Она себе такую внешность не выбирала в отличии от жертв силикона с силиконовыми ртами в половину лица, вот где ужас. Это достойный уважения человек, пусть Господь хранит её!
U r beautiful inside and out don't let anybody say different we r all unique in our own way💖
What about y’all covering Stormorkens syndrome? Only 1 and 13 people in the world have it and my step mom is one of those 13. It’s quite rare.
What does it do?
Pretty🌸💞
Wow this is a big motivation for me as well to move on and face every single day! This girl is awesome though!!
Ive seen one man from filipino has the same disoder.
she is amazing with such a bright outlook and such loving parents. keep up that positive attitude and smile
Какого только ужаса не встретишь на просторах интернета...прости Господи
Jesus te Ama do jeitinho que você e ❤️
I love her dancing! You go girl!!🥰💅
She looks like the average lousian black person?
Take away the stupid societal "standards", and all I can think is what a beautiful woman she is. Inside and out!
YOU ARE SO BRAVE!
She's beautiful
Смотрю и таких разбирают потихоньку...Но как говорят-"с лица воду не пить".
Primeira vez que vejo uma brasileira aqui
Linda Hamilton in Terminator 10 be like
Well...for me she's not that ugly.
What a beautiful woman.
Her face looks like a filter... It always amazed me how people with a start in life like that are some of the strongest personalities out there.
What is the point of saying she looks like a filter ?
She'd feel alot more better about herself if we didn't live in an age of horrible heartless dickheads and yes, social media...God bless ya girl, stay safe stay strong aswell
Social media brought her acceptance and encouragement. There have been dickheads through the ages. There are more dickheads now only because there are more people now. The good ones have always outnumbered the bad.
Actually the horrible heartless dickheads lived in previous decades or centuries. Today we are a more open minded society, there’s still a few exceptions of humans but not like it was before. Years ago she would of have been abandoned or kept locked in her house because the family and society would of have been ashamed. She definitely wouldn’t of have a father and family like that years ago.
Guerreira exemplos a seguir
🧡🧡🧡
Looks like Mick Jaggers sister.
Deus diz que temos que amar nosso próximo como a nós mesmo continui assim com essa autoestima bjss
Oh Allah!!!!!!! 😭😭😭😭😭 I cried after watching this 😥😔
@cats What do you mean?? Allah means god in our Language
Whis Allah xd
She gets my likes
I'm sorry but she needs to stop.
I think you are a very courageous young lady. I think you put lot of people to shame with your bravery. You be who you are, change nothing about yourself unless you are doing it for YOU.. If we were in the same social circle I would be honoured to have you as a friend. But I'm an old fart..all that butt waggling is beyond me now lol. You're a beautiful girl, never let anyone tell you different xxx
ужас.....какой ужас.........
Keep going girl 🥰🥰
Não à ninguém que possa ajudar esta jovem 🇵🇹💖💖💖💖💖💖💖💖💖💖💖💖
Se é doente?
Que?
"Привлекательность бывает обманчивой, и красота - пустой, но женщина, которая боится Бога, заслуживает хвалы". (Притчи 31:30). К внешности человека привыкаешь, и красота не вечна. Доброе сердце радует сердца, а бессердечная красота не нужна никому.
KAWANA VC É TOP. SUA FORÇA É INVEJÁVEL. SUA HISTÓRIA É LINDA.
I have never seen a face like this woman’s before.
i'm done with the internet
Br Brasil
Oi pessoal